National Patient Data Day

Please join us in Leeds on 24 June 2025 for the inaugural use MY data National Patient Data Day Conference (#NPaDD2025).

NPaDD is a patient data conference with a difference. It is patient-designed and patient-driven. Designed by patients for patients and the public, NPaDD 2025 will bring together a live audience of 250 patients, relatives and carers, alongside a diversity of stakeholders in the patient data world, including health professionals, researchers, data controlling bodies, commercial data users, policy organisations, and media.

Our conference will champion the use of patient data across the four nations of the UK and will promote:

• use MY data’s influential work to promote the use of patient data to improve outcome and save lives,
• patient voices to shape the patient data agenda, through a strategy of positive engagement.

The conference will drive forward our vision of every patient in the UK willingly giving their data to support medical research and their own care.

Confirmed key speakers

• Yvonne Adebola, Executive Group Member, use MY data
• Dr Nicola Byrne, National Data Guardian for Health and Social Care, England
• Rory Cellan-Jones, Independent journalist & use MY data Member
• Pearse Keane, Professor of Artificial Medical Intelligence at UCL Institute of Ophthalmology
• Richard Stephens, Executive Group Chair, use MY data
• Ming Tang, Chief Data and Analytics Officer for NHS England

Conference registration information for Members

As with all use MY data events, the conference is free to attend for use MY data Members.

We are operating a deposit scheme, as we anticipate that it will be over-subscribed and we wish to ensure that those who book places do attend.

To secure a place, Members are asked to pay a deposit of £25.00. Following your attendance at the conference, this will be refunded to you in full. Alternatively, you may choose to donate your deposit to use MY data to help cover the costs of the event.

After booking, if you find that you are unable to attend, please give us notice by the end of Sunday, 25 May. This will enable us to offer your place to another delegate. After this date, it will not be possible to return your deposit.

Expenses to cover your travel (and accommodation if required) can be covered, subject to our expenses policy. Details are contained within your confirmation email.

It is essential that cost is not a barrier to Members attending the conference. If making a deposit is a barrier for you to attend, we have some concessionary places available. To enquire about a concessionary place, please contact alison@usemydata.org.uk. We promise that your enquiry will be handled in a sensitive manner.

Registration information for Patients, relatives and carers / Members of the public

It is essential that cost is not a barrier to attending our conference. If the fee (£25.00) is a barrier for you to attend, we have some concessionary places available. To enquire about a concessionary place, please contact alison@usemydata.org.uk. We promise that your enquiry will be handled in a sensitive manner.

Alternatively, with your interest in our event, you may wish to consider joining use MY data. Details of our vision, mission and aims and the benefits of joining us are available here.

With thanks to our sponsors;

GOLD sponsors

The Association of the British Pharmaceutical Industry

DARE UK (Data and Analytics Research Environments UK)

Flatiron Health

Health Data Research UK (HDR UK)

LifeArc

Public Engagement in Data Research Initiative (PEDRI)

SILVER sponsors

Arcturis Data Limited

UK Biobank